Need Help in Clearwater Florida July 2!!

From: whywalk57 Jun-21 1:13 pm
To: ALL (1 of 8)

3147.1

Please--I am asking for help in making my niece's 16th birthday special...

Adrienne ("AJ") is a very special kid...

She will be 16 on July 2. When she was 2 years old, doctors told her parents--my brother and his wife--that she would likely not survive into double digits. While born seemingly healthy, at 2 she was diagnosed (after being MIS-diagnosed and having unnecessary brain surgery) with a genetic disorder called ataxiatelangictasia (AT)...the disease depletes her immune system and effects her motor skills, among other things.

Her mother--my sister in law--died several years ago on July 1 (the day before AJ's birthday!) Her brother died last year on Valentine's Day, eleven days shy of his 21st birthday...

My brother loves his Harley and his kids love when he takes them for rides...AJ, too, has always wanted to ride on the bike with her dad, but her lack of motor skills makes it impossible for her to hold on and, therefore, makes a ride out of the question.

She's going to be 16! Sixteen is an age when girls are getting their licenses and going out on dates and the whole world is ahead of them. It tears my heart out that AJ won't have the "normal" rites of passage. She doesn't complain, but I can't stand it! So many things that the rest of the world take for granted, she will never have. I want to give her something to make her 16th birthday special. I truly do not know how many more she will have.

I love my brother dearly; he works so hard to be both a dad and a mom to his kids, and AJ has always had a favorite place in his heart. (Mine, too.) He often speaks of the day when he can afford a new bike with a sidecar so he can take his "Jaybird" for a ride...but as a single parent with 4 kids, and one of them with a progressively degenerating disease, the liklihood of that happening any time soon isn't strong.

I'm going to Clearwater for Adrienne's birthday. I would like some help in locating a Harley with a sidecar that I can rent for an hour or two on July 2 so that AJ can (finally!) have a (birthday) ride with her dad and me (I have my bike there).

I'd appreciate any and all help I can get in making July 2 a special day for a very special girl. Harley riders find ways to MAKE THINGS HAPPEN! I want AJ to have a STELLAR day--both she, and my brother, deserve it!

My email address is whywalk57@charter.net

Please help if you can!

Thanks,
lori